It's been awhile since I have updated this. Mostly because I have no idea what to say. It was recommended to me to have daughter tested for celiac/gluten intollerance. A blood test of some sort. I went to her doctor and had the test ordered. He recommended that she go back on gluten, since we had been off it for a month, before taking the test. We did that, and didn't see any adverse effects. Then I didn't know what to think. I did not have her take the blood test.
Then it was recommended that I go see an allergist. Not your normal kind, but the kind that does the muscle testing. She showed a slight allergy to wheat and dairy. She went off it for a couple of weeks and the doctor did some strange kinesiology type body talking thing that I don't understand, in order to 'heal' her of this allergy. She then tested negative to an allergy. I realize that allergy is different than intollerance.
So, I am at a loss at this point. What I know is this, she still has constipation struggles and some gas, but not as much as before. She still gets tummy aches/cramping after eating flour products, but not every time. So my best guess is that she has a slight intollerance/inability to digest gluten. What has worked at this point is having her chew papaya enzymes when she gets a tummy ache. It stops shortly afterward.
I wonder if building her stomach flora would help and getting her on enzymes regularly? Maybe doing a intestinal cleanse?
We are currently eating gluten. However the changes I have made are that I don't buy bread anymore. Well, not as often. We would go through a couple loaves a week. Now I buy one loaf about every three weeks. I have resorted to frozen waffles in the mornings for ease, but I'd like to change that too. My girl loves pasta and I don't want to eliminate it all together, so maybe having it a couple times a month for dinner would be good.
One thing I did notice is that we were eating healthier and felt healthier not eating gluten. It would probably be a good idea to keep to that kind of diet at least at home. I plan on updating our journey, where ever it takes us.
Susan
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Hi! I thought you might be interested in checking out this page on my blog, it has a lot of celiac and gluten intolerant info.
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http://dolcemusica.blogspot.com/2007/11/gluten-sensitivity-info.html
It was suspected by my doctor after a blood test that I had celiac 4 years ago (in fact, she said she's never seen a blood test with as high a level in someone who didn't have celiac). Because I became pregnant, we had to wait for a year for the endoscopy. I do indeed have it. My symptoms were a HUGE stomach cramping attack about once a month. For a few years I had no idea what it was, because I would always think about what I'd eaten the day before that was out of the ordinary because I didn't have them every day! I hope you are able to control her outbreaks, how horrible for a child to go through this!!!
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